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12 - The Need for Better Health Information: Advancing the Informed Patient in Europe
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- By Don E. Detmer, President and CEO, American Medical Informatics Association; Professor Emeritus and Professor of Medical Education, Department of Health Sciences at the University of Virginia; Senior Associate, Judge Business School, University of Cambridge, Peter Singleton, Senior Associate, Judge Institute, University of Cambridge; Principal Research Fellow, Centre for Health Informatics and Multiprofessional Education (CHIME), University College London; Founder and Director, Cambridge Health Informatics Limited (CHIL), Scott C. Ratzan, Vice President, Government Affairs, Europe, for Johnson & Johnson
- Michael A. Santoro, Rutgers University, New Jersey, Thomas M. Gorrie
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- Book:
- Ethics and the Pharmaceutical Industry
- Published online:
- 04 December 2009
- Print publication:
- 31 October 2005, pp 196-205
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Summary
INTRODUCTION
The relationship between patients and physicians or other health professionals has steadily changed over time from an authoritarian, paternal relationship to one in which the patient is more empowered and involved in treatment choices. As the public has become more “consumerist,” people are less accepting of a passive role in their healthcare. This change allows healthcare decisions to reflect the patient's own values and priorities rather than those presumed by clinicians.
As the dynamics between doctors and patients change, the relationships among professionals are also shifting toward a “team-based” model of healthcare delivery that draws upon the range of skills and expertise needed to address health problems, particularly chronic illness. The team-based delivery model, although it brings certain benefits, can also create tensions among different parties to a patient's care program, and poses the risk that important health information for the patient may somehow get lost in the process.
The term “informed patient” presumes that people with illnesses (and healthy people) both deserve and need appropriate health information. An informed patient is enabled to become involved in his or her own healthcare, to seek out the best care, to decide on the best courses of action, and to follow the agreed-upon course of treatment. The informed patient concept, as used in this chapter, also includes non–professionally trained caregivers (often family members), because they may serve as proxies for an incapacitated patient and are often part of the social unit making decisions for the future.
Introduction
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- By Don E. Detmer, Professor of Medical Education University of Virginia; Senior Scholar Judge Institute of Management Studies, University of Cambridge; President and Chief Executive Officer American Medical Informatics Association, Elaine B. Steen, Health Policy Analyst University of Virginia; Project Manager and Editor Blue Ridge Academic Health Group
- Edited by Don Detmer, University of Virginia, Elaine Steen, University of Virginia
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- Book:
- The Academic Health Center
- Published online:
- 12 November 2009
- Print publication:
- 12 May 2005, pp 1-3
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Summary
This book began with a set of questions. What are society's health needs in the twenty-first century? What kind of health system will be able to meet those needs? How can academic health centers (AHCs) and other health sector leaders help create a health system and health organizations that meet the health challenges of the twenty-first century? What capabilities should AHCs and other health care organizations develop for short-and long-term success in such a health system?
This book is based on a series of reports produced by the Blue Ridge Academic Health Group (Blue Ridge Group). The Blue Ridge Group seeks to help academic health centers better meet the needs of society. Towards that end, the Group has explored a set of pivotal health policy, leadership, and management issues and identified ways that AHCs can strengthen their viability while striving to improve the health of individuals as well as the general population. Through the course of its work, the Blue Ridge Group has developed a framework for how the health system and health care organizations should evolve to meet the challenges of improving health in the twenty-first century.
The Blue Ridge Group began its work in 1997 with three basic premises. First, demographic changes, technology, economic forces, and societal developments demand new approaches in health care delivery systems, education, and research. Second, the reforms that created upheavals in the health care delivery system during the 1980s and 1990s were primarily structured to achieve financial objectives.
Acknowledgments
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- By Don E. Detmer, Professor of Medical Education University of Virginia; Senior Scholar Judge Institute of Management Studies, University of Cambridge; President and Chief Executive Officer American Medical Informatics Association, Elaine B. Steen, Health Policy Analyst University of Virginia; Project Manager and Editor Blue Ridge Academic Health Group
- Edited by Don Detmer, University of Virginia, Elaine Steen, University of Virginia
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- Book:
- The Academic Health Center
- Published online:
- 12 November 2009
- Print publication:
- 12 May 2005, pp xi-xiv
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